When do you gear up for an autism fight? When parents have been been in this "autism business" for a while, we sometimes can feel a fight coming on.We've developed a radar, we see the signs. Your gut tells you that a new aide isn't working out or a program needs to be changed or your child needs a service that he or she isn't receiving. I've had that radar looming before. When do you gear up for an autism fight? One time, my child's social skills services was being provided by a California regional center. My child is a client of one of the … [Read more...]

How do you transition your child's aide? Aides come in all shapes and sizes. They're people. Some have behavioral degrees, others are just kids in college who need a job (read no training). Aides have lives just like anyone. And, may are younger people in their 20's. They change jobs, get married, and go back to school. Also, in general, many aide jobs do not pay well. We once lost a very good aide because her job simply wasn't paying the bills. What does this lead to...transitions. Aides move on and our autistic kids have to get used to … [Read more...]

Bringing a child to autism-related meetings I am a committee member for the Los Angeles Walk Now for Autism Speaks. For many walks, I have been the chairperson in charge of the 300 or so volunteers for this very large yearly event. The LA Walk happens each year typically in April. The committee begins meeting around December. We meet once a month until April, where we meet twice. At first, this volunteer position was something I did by myself. My husband wasn't involved and he would taken care of our child when I was at the meetings. Then, … [Read more...]